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Ways to cope with life and family issue
Autoimmune Diseases like CIDP, Fibromylagia, Chronic
Fatigue Syndrome, Lupus, Myositis, scleroderma, all the vasculitis, arthritis appear like invisible diseases hidden within
the body. In some cases like Roscea they impart a red color to the
persons body, and people get a impression that the person is
healthy. Wegners has strawberry gums which are usually kept hidden.
Learn the secrets on
diagnosis, prevention & treatment of autoimmune diseases see
the , "Flame within contents".
How to get sympathy
This is a common problem in invisible
diseases how to let others know you are sick. You have to
carry a walking stick, wear some knee or wrist braces not only these
things help in supporting your tissue and helping you walk.
Others may be more sympathetic and offer you a seat when you
are standing if you have a stick.
The younger generation responds to neck
braces very quickly! " Did you have a whip lash"?
How to relax.
Learn to relax and learn to mediate. Pray go
to Synagogue, Church, Temple or Mosque. Call us for a
guide.
Where to get more
help in understanding autoimmune diseases, how to prevent
them and their treatment.
Please read the
autoimmune diseases E-BOOK. Specially written for people
and families with autoimmune disorders. That means all of
you have it or will have it. Stop arthritis, Alzheimer's,
skin diseases in their tracks.
Where to get IVIG
Please contact us for the best provider in your area.
Before you decide to get IVIg try the E-Book for simple ways
that may cure your disease. Do you want to be tied to a
chair for 6 hours, 6 days a week for 12 moths to 12 years.
Its time you demanded a quicker treatment at home or office.
How do we help
We have made patient appointments with top notch
neurologist nationwide. For those in other countries we have
had their cases reviewed by experts in USA. Patients who
were being overcharged for IVIg we have had their cost
reduced dramatically. Help you select the best supplements.
Help you get IVIg covered by your insurance. Help avoid co
pays.
The Big nerves also called large fibers in all mammals
are covered by a Myelin sheath wrapped around the axon.
Myelin loves to conduct electricity at speed of 60-100
meters per second. Loss of Myelin leads to development of MS
and CIDP, in these diseases the Myelin is attacked by the anti Myelin antibodies.
They start to destroy the Myelin sheath and the Schwann cell
cannot keep up with the repair. You just have to figure out
how to stop the Myelin attack by your own antibodies then
the Schwann cell will do the repair. Read our e.book for
easy ways to stop the attack with simple supplements and
antibiotics, some cases will need the heavy guns.
Diabetics get more CIDP and is misdiagnosed as
polyneuropathy.
There are about 20 million Americans suffering from CIDP, who do
not know that majority of them have CIDP. That is about half the
population of Canada.
Do the Twenty Million know they can be treated and they
may have CIDP? Living with CIDP
& autoimmune disorders
CIDP like all autoimmune diseases can follow a pattern of relapses and remissions
with or without a gradual increase in symptoms. In a relapse new symptoms
can occur
or old symptoms may reappear or get worse. Relapses can last for
several months and may be relatively slight or quite severe. A
remission occurs when the symptoms experienced during the relapse
disappear partially or completely weeks, months or even years.
CIDP can be progressive and symptoms can gradually increase over a period of many
years and it may be difficult to identify `better' or `worse' times.
It is not possible to predict with certainty how CIDP is going to
affect an individual in the future just like as in Multiple
Sclerosis or any other autoimmune disease. The pattern of relapses and
remissions varies greatly from person to person. A period of relapse
can be very disturbing but many patients make a good
recovery. Coping with uncertainty is the most difficult aspects of 'living
with CIDP'. You should try and accept this variability without getting
too worried about it.
You and your family and friends
A diagnosis such as CIDP of a chronic condition with an uncertain
prognosis, may well throw a strain on family and other relationships.
You have to learn to accept help when you need it. Ask for
help from friends and family as well as support groups. You, family and friends
should be able to speak
openly and honestly with each other you will probably find that
you are able to help each other through difficult times with the
result that the bonds are strengthened.
Instinctively children are aware that something is wrong and that
you are worried. It is important that their questions are answered
as and when they occur. Older children can become surprisingly mature
and a source of strength. Trying to keep your problems to yourself
will not spare them any anxiety. Be open and communicate
honestly.
You and your doctor
It is important to build a good relationship with your doctors,
both primary care and specialist. Because of the rarity of the illness, many
doctors will not have encountered it before. The symptoms are difficult
to describe and may not be taken seriously at first. Each case of
CIDP is different, and relapses, if they occur, may bring new symptoms
and problems. Because of the variability in severity and progression
of the disease, the doctor will not be able to give you a definite
prognosis.
Although there is not one single overall treatment for CIDP, there
is much that your doctor can do to help. Each person responds in
different ways to different treatments. A period of experimentation
with different treatment regimes is likely to be necessary in order
to discover the regime which is most appropriate for you.
Currently IVIG is the preferred treatment.
Attitude to life
It is important to be as positive as possible about everything.
Our emotional state plays a large part in our health and although
the norms of life may have to change for a while, the majority of
patients with CIDP can expect a good quality of life.
Modification of ones lifestyle may be necessary but it is better
to emphasize strengths, undertaking what can be achieved rather
than failing to achieve the impossible. It is a natural reaction
to become frustrated but the acceptance and understanding of the
problem is more than half the battle. Addressing the problems of
CIDP can be seen as bringing a new challenge.
Being positive can take a lot of effort, determination and even
courage and can be helped by a similar attitude in those that support
and help you.
What you can do to help yourself
You should follow as healthy a lifestyle as possible. This will
help to prevent other illnesses and infections which have been shown
to trigger relapses.
A nutritionally balanced diet will ensure you are getting all the
vitamins and minerals you require. There is no evidence of any special
dietary requirements for CIDP sufferers. It is sensible to keep
your weight down, since more weight is more difficult for weak legs
to carry. (see our diet page for more info). Diet
Regular exercise is important for overall health and should be
taken according to individual limits and capabilities.
Over exertion
causes fatigue. However a little regular exercise will help to
minimize
muscle wastage and give you a good feeling of well-being. Any form
of exercise that you enjoy and can comfortably follow will prove
beneficial. Ask your physiotherapist to show you.
Adequate rest periods are essential to avoid fatigue. Stress and
tension may irritate the symptoms of CIDP and therefore relaxation
will allow you to unwind and `recharge'.
Imran Khan MD Nanotech Lahore Medical Center CIDPUSA Staff.
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