High arched feet with shrinkage of
muscles in the lower leg
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Current standards to diagnose CIDP do not recommend
a nerve biopsy: As the skip lesions of CIDP may or may
not be seen in Sural nerve biopsy. After biopsy the patient
may have a sensory deficit. Which may be worse then the original
disease. I have seen people who are worse off due to nerve biopsy.
Dr. Katz in San Francisco has said that Leprosy may be the
only reason to do a nerve biopsy.
Finding of inflammation in the
nerve biopsy,
is rare, definitely will confirm the diagnosis of CIDP. However, the
absence of inflammation does not rule out CIDP. Findings of
demyelination (loss of myelin around the nerve) on the nerve biopsy
can be used to confirm the clinical presentation and suggest a
diagnosis of CIDP. We find the nerve biopsy unnecessary.
For those in whom this
procedure has to be done. The best technique is described by a
Austrian team. Where they
only remove a 10mm piece of the Sural nerve and reattach the stumps
by microsurgical repair. They claim none of their patients had any
complaints of pain or sensory loss.
However
Massachusetts General Hospital has come off with a novel idea of
doing a skin biopsy instead of a nerve biopsy. This provides more
information in small fiber neuropathies and is less invasive. In the
old days GBS patients were in bed for 6 months, today patients
improve in a few days, due to modern treatments.
According to Dr.
Jonathan Katz the best test for CIDP is to give treatment and see if
the patient responds to the treatment. (This saves time and money.)
Howard W. Sander, MD
and Norman Latov, MD PhD
have said , "although patients
may not meet the diagnostic criteria for inclusion in
clinical trials of CIDP, they may still benefit from
current and future treatments used in CIDP". So doctors,
Please, Don't follow guidelines of ANA.
If you are following
ANA guidelines you will miss most of the patients with CIDP.
Our E-book has the complete step by step
protocol, for diagnosis of all the seven sub types of CIDP and 101
autoimmune diseases. Their treatment, and alternative supplements
which helps people get back on their feet. These protocols covers
Alzheimer's, CIDP, MS, Pemphigus, just to name a few! IVIg is
the best treatment for any autoimmune disorder specially CIDP.
For long term treatment,
(interferon, Cellcept, Cyclosporine, Cyclophosphamide,
Methotrexate are used ) These drugs suppress the immune system.
Severe immune suppression can lead to other problems (cancer).
IVIg and
Cyclosporine combination is described successfully in several
reports. Steroids are only used for short term benefits. Some
Centers are using Avonex, Enbrel, Remicade and Rituxan. From early
reports all of these drugs works well, recently a novel
pharmaceutical has been seen to help CIDP! These cheap drugs help
many autoimmune diseases. (answer in our e-book). Many CIDP
patients have healed no IVIg, no medications chronic medications.
Ditto for alzheimers, ITP , arthritis, kidney disease.
continue to next page
Read,
ABOUT MISDIAGNOSIS OF CIDP
The diagnosis page provides a one minute
guide how to diagnose a autoimmune disease.
The Diet page provides a easy to follow
anti-inflammatory diet.
This page is about information on
chronic inflammatory neuropathy.
